Childhood Cancer
August 26, 2026

Navigating Childhood Leukemia: A Mother’s Story of Relapse, Clinical Trials, and Hope

Betsy shares her family’s experience of childhood leukemia, a symptomless relapse, clinical trials, and finding practical hope in the darkest moments.

Guest: Betsy — Mother and childhood cancer advocate

When her 6-year-old son Beaudin was diagnosed with Acute Lymphoblastic Leukemia (ALL), Betsy and her family entered a completely new world. After 22 months of gruelling chemotherapy, with the finish line in sight, a routine test revealed a silent relapse in his spinal fluid.

In this episode, Betsy shares the raw reality of childhood cancer, the high-stakes medical decisions parents are asked to make while living through trauma, and her family's experience of clinical trials. She also explains why she created The Heavy Wait: a source of honest stories, dark humour, practical advice, and hope for parents searching the internet from a hospital room in the middle of the night.

In This Episode

  • Beaudin's initial ALL diagnosis and treatment plan.
  • The shock of a symptomless spinal fluid relapse.
  • Navigating the physical and emotional toll of clinical trials.
  • Why the patient voice is crucial for pharmaceutical and clinical leaders.
  • Making medical information accessible to parents in survival mode.
  • Finding dark humour and hope in the darkest places.

  • Episode Highlights

  • 0:27 — The “best” worst news: Betsy describes Beaudin's diagnosis and the counter-intuitive reassurance of a 97% survival rate.
  • 1:30 — The silent relapse: A routine test changes everything, four months before the end of chemotherapy.
  • 31:25 — Decision fatigue in hospital: Why families need plain-language resources when urgent medical choices cannot wait.
  • 31:47 — Middle-of-the-night hope: Betsy's message for parents searching for answers from a hospital room.

  • Resources

  • The Heavy Wait: https://theheavywait.com/
  • Watch the full episode: https://youtu.be/sbk5L04teAY

  • About The Heavy Wait

    The Heavy Wait shares Betsy's honest account of parenting through childhood cancer, combining lived experience, practical guidance, dark humour, and hope for other families.
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    The Heavy Wait
    Childhood cancer blog

    About the Organization

    Honest stories, practical guidance, dark humour, and hope for families navigating childhood cancer.

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